Table 1.

Characteristics of AYA HOPE participants

Frequency%
Sociodemographic variables
 Age at diagnosis, y
  15–196212.8
  20–2921143.5
  30–3921243.7
 Sex
  Male30362.5
  Female18237.5
 Race/ethnicity
  White39481.2
  Black398.0
  Asian367.4
  Unknowna 163.3
 Health insurance status
  Yes44291.1
  No367.4
  Unknown71.5
 Service needed
  Nurse comes to home
   Yes306.2
   No43489.5
   Unknown214.3
  Support groups
   Yes8617.7
   No37477.1
   Unknown255.2
  Mental health services
   Yes12225.2
   No34170.3
   Unknown224.5
  Physical/occupational therapy
   Yes6814.0
   No39180.6
   Unknown265.4
  Pain management specialist
   Yes5912.2
   No40483.3
   Unknown224.5
  Any service needed
   Yes19239.6
   No29360.4
Clinical variables
 Health status
  Good/very good/excellent40483.3
  Fair/poor8116.7
 Cancer type
  Germ cell tumor18939.0
  Hodgkin lymphoma13427.6
  Leukemia214.3
  Non-Hodgkin lymphoma11724.1
  Sarcoma245.0
 Cancer stage
  All cancers combined
   Stage I16133.2
   Stage II13928.7
   Stage III6613.6
   Stage IV5010.3
   Unknown6914.2
 Treatment received
  Surgery
   Yes5912.2
   No42687.8
  Radiation
   Yes5210.7
   No43389.3
  Chemotherapy
   Yes23849.1
   No24750.9
  • aUnknown race includes selections for American Indian/Alaskan Native.