Table 1

Demographic, medical history, and psychological characteristics of acceptors and decliners of an offer to have genetic testing for HNPCC

Acceptors (n = 77)Decliners (n = 181)
Sex (% female)55%59%
Age, yr
 Median (IQR)a44 (23)50 (22)b
 Range19–7022–83
Race (% Caucasian)96%100%c
Years of education, median (IQR)16 (4)15 (6)c
Marital status (% married)71%75%
Distance from Johns Hopkins Hospital, miles
 Median (IQR)d53 (163)428 (702)d
 Range3–28673–2874
Risk perception, mean (SD) (0–100)58 (19)45 (26)e
Relative risk perception
 Less or about the same8%32%e
 Higher92%68%
Cancer thoughts
 Rarely/never37%54%c, f
 Sometimes49%35%
 Often/a lot14%11%
Coping certainty
 ≥90%83%52%e
 <90%17%48%
FDRs
 One66%65%
 Two30%19%
 Three or more4%16%
Colorectal screening (% had colonoscopy)82%55%c
  • a IQR, interquartile range.

  • b P < 0.01.

  • c P < 0.05.

  • d P < 0.0001.

  • e P < 0.001.

  • f Rarely/never vs. sometimes/often/a lot.