Article Figures & Data
Tables
- Table 1.
Characteristics of AYA HOPE participants
Frequency % Sociodemographic variables Age at diagnosis, y 15–19 62 12.8 20–29 211 43.5 30–39 212 43.7 Sex Male 303 62.5 Female 182 37.5 Race/ethnicity White 394 81.2 Black 39 8.0 Asian 36 7.4 Unknowna 16 3.3 Health insurance status Yes 442 91.1 No 36 7.4 Unknown 7 1.5 Service needed Nurse comes to home Yes 30 6.2 No 434 89.5 Unknown 21 4.3 Support groups Yes 86 17.7 No 374 77.1 Unknown 25 5.2 Mental health services Yes 122 25.2 No 341 70.3 Unknown 22 4.5 Physical/occupational therapy Yes 68 14.0 No 391 80.6 Unknown 26 5.4 Pain management specialist Yes 59 12.2 No 404 83.3 Unknown 22 4.5 Any service needed Yes 192 39.6 No 293 60.4 Clinical variables Health status Good/very good/excellent 404 83.3 Fair/poor 81 16.7 Cancer type Germ cell tumor 189 39.0 Hodgkin lymphoma 134 27.6 Leukemia 21 4.3 Non-Hodgkin lymphoma 117 24.1 Sarcoma 24 5.0 Cancer stage All cancers combined Stage I 161 33.2 Stage II 139 28.7 Stage III 66 13.6 Stage IV 50 10.3 Unknown 69 14.2 Treatment received Surgery Yes 59 12.2 No 426 87.8 Radiation Yes 52 10.7 No 433 89.3 Chemotherapy Yes 238 49.1 No 247 50.9 ↵aUnknown race includes selections for American Indian/Alaskan Native.
- Table 2.
Frequency (n) and percentage of comorbidities in AYA HOPE participants, by comorbidity index
Comorbidity index AYA HOPE Charlson NCI n (%) n (%) n (%) Comorbidity categories Cardiovascular 30 (6.2) 12 (2.5) b Diabetes 18 (3.7) 18 (3.7) 18 (3.7) Endocrine 10 (2.1) b a Gastrointestinal 20 (4.1) 6 (1.2) 5 (1.0) HIV/AIDS 18 (3.7) 18 (3.7) 18 (3.7) Hypertension 29 (6.0) 29 (6.0) a Liver 13 (2.7) 13 (2.7) 13 (2.7) Mental health 40 (8.2) a a Neurologic 42 (8.7) b b Obesity/overweight 28 (5.8) a a Renal 5 (1.0) b b Asthma/respiratory 30 (6.1) 30 (6.1) 30 (6.1) Rhematologic/autoimmune 5 (1.0) 5 (1.0) 5 (1.0) Hematologic b a a Distribution of number of comorbidities 0 320 (66.4) 381 (78.6) 406 (83.7) 1 94 (19.4) 80 (16.5) 66 (13.6) ≥2 71 (14.6) 24 (4.9) 13 (2.7) - Table 3.
Multivariable adjusted ORs and 95% CIs for each of the services needed and health status, by comorbidity index
Comorbidity count AYA HOPEb Charlsonb NCIb Service needed/health statusa OR (95% CI) OR (95% CI) OR (95% CI) Nurse come to home 0 1.00 1.00 1.00 1 1.37 (0.53–3.53) 1.10 (0.39–3.08) 1.65 (0.62–4.35) ≥2 1.20 (0.40–3.57) 2.44 (0.63–9.37) c Support group 0 1.00 1.00 1.00 1 1.06 (0.55–2.03) 1.53 (0.82–2.88) 1.15 (0.57–2.29) ≥2 1.56 (0.80–3.05) 0.86 (0.28–2.61) 0.64 (0.12–3.34) Mental health services 0 1.00 1.00 1.00 1 1.62 (0.93–2.84) 2.01 (1.14–3.53) 2.26 (1.24–4.11) ≥2 2.05 (1.10–3.82) 1.53 (0.58–4.00) 0.68 (0.16–2.86) Physical/occupational therapy 0 1.00 1.00 1.00 1 1.08 (0.54–2.17) 1.43 (0.72–2.84) 1.55 (0.75–3.18) ≥2 1.12 (0.50–2.44) 1.21 (0.39–3.79) 0.70 (0.13–3.75) Pain management specialist 0 1.00 1.00 1.00 1 2.56 (1.30–5.04) 2.18 (1.09–4.37) 2.07 (1.00–4.27) ≥2 1.75 (0.78–3.92) 1.84 (0.60–5.67) 0.48 (0.05–4.08) Health status 0 1.00 1.00 1.00 1 1.70 (0.87–3.33) 2.35 (1.23–4.52) 3.17 (1.61–6.26) ≥2 3.16 (1.58–6.33) 5.59 (2.05–15.2) 8.88 (2.44–32.3) NOTE: Significant ORs and 95% CI are in bold.
↵aService needed: yes versus no; health status: fair/poor versus good/very good/excellent.
↵bModels are adjusted for both clinical factors (i.e., cancer type, health status, treatment) and demographic factors (i.e., age, sex, and race/ethnicity).
↵cNot able to get statistics because of small number of cases.
Additional Files
Supplementary Data
- AYA HOPE Comorbidity supplemental table - List of specific conditions in the AYA HOPE comorbidity index